Access Data & Biosamples
To accelerate HD therapeutic research and development, high-quality datasets and biosamples from several studies are made available through the Enroll-HD platform. To explore all available resources, please visit the Clinical Datasets, Biosamples, and Data from Biosamples pages.
If you are a researcher at a recognized research organization, you can request data or biosamples via the process outlined below. You will need institutional authorization to sign data and/or biosample use agreements. Please familiarize yourself with the Clinical Data and Biosample Access Policy.
It will take anywhere from two days to several months to fulfill your resource request depending on the type of data or biosamples you request. Estimated timelines are provided below.
Documents & Forms
How to expedite your request
Before you submit an access request, carefully review the study and dataset specific information provided to ensure the data/biosamples requested will meet your research needs. If in doubt, contact us.
Be thorough & responsive
Ensure request forms are completed in full and in sufficient detail before submission and respond promptly to questions received from the Operations team and/or the Scientific Review Committee.
Review Use Agreements
Limit number of requests
Limit the number of requests made to those datasets/biosamples that are minimum and sufficient to meet your needs. Note that each dataset requires a separate Data Use Agreement to be signed. Enhanced identification risk procedures must also be applied when multiple datasets are provided. This procedure will extend delivery time and may result in data suppression or aggregation protocols that would not otherwise be applied.