Category: HDBuzz RSS

Bringing HD Treatments to Market: The Role of Regulatory Oversight

There has been a lot of buzz in the Huntington’s disease (HD) space recently with multiple updates from companies testing many different drugs in the clinic. As these drugs move closer to seeking approval from the regulators, this has raised some questions. Why are some trials held in certain countries and not others? What does […]

Interruptions are encouraged

Scientists searching for new ways to stop Huntington’s disease (HD) have focused in on the repeating C-A-G letters of genetic code that cause the disease. That’s because the exact way these C-A-G letters repeat may have a big impact on when and whether someone develops HD. A group in Boston led by Dr. Jong-Min Lee […]

HDBuzz needs your help

Since its inception in 2010, HDBuzz has existed with the financial support of non-profit organizations within the Huntington’s disease (HD) space. In our 14 years of service, we have never directly asked the HD community for donations. However, recently during a tenuous time in the existence of HDBuzz, we lost the support of one of […]

14 changes for a healthier brain

In this article, we’re bringing you advice from the 2024 Lancet Commission on dementia prevention, intervention, and care – a group of experts who have combed through massive amounts of previous research collected over decades to highlight 14 risk factors associated with dementia. The good news? Those 14 factors are things that can be modified. […]

Highlighting a link between brain disorders on Ataxia Awareness Day

Today, on International Ataxia Awareness Day, we’re bringing awareness to a group of brain disorders known as Ataxia, which can take many forms. Like Huntington’s disease (HD), Ataxia is degenerative; it damages brain cells, causes changes in movement, and involves complex symptoms that worsen over time. HD and some forms of Ataxia have a shared […]

Hope vs. hype: seeking truth in recent Prilenia headlines

Disclaimer: I have written this piece from a position of privilege – as an HD family member that has been fortunate to receive an education that allows me to deeply understand the nuances of Huntington’s disease. I know what it means not only at the biological level, but also at the family level. I am […]