Support for HD families
The best way to access support and resources to help cope with HD is through local and national organizations.
Advocacy groups by country
Click a country below to view connected advocacy groups.
Learn about HD research
These organizations provide plain language articles and videos where you can learn more about current HD research.
CHDI’s Annual Huntington’s Disease Therapeutics Conference, usually held in Palm Springs, California, gathers together many of the leading HD drug developers from academia and pharmaceutical/biotechnology companies to present their latest research and share progress and new ideas. The Postcard from Palm Springs video series gives a short round-up of the major themes from each year, including the latest on clinical trials and new drugs that will soon be tested in people.
HD Buzz provides regular updates on the latest HD research news and explains the science in plain language for non-scientists. It includes news stories and explainers in many languages, including “Start here!” – written for people who are new to HD or to the world of HD research. Many of the stories are written by neurologist Ed Wild, MD and neuroscientist Jeff Carroll, PhD. Other contributors include clinicians and researchers from around the world.
HDYO is a nonprofit voluntary organization that provides information and support for young people affected by HD, including educational videos about HD and HD research.
The Huntington Study Group (HSG) provides information and videos where you can learn about current HD research. Their website also features videos and information about clinical trials.