Link to the study portal for data-entry
A worldwide observational study for Huntington’s disease families
Enroll-HD is now up and running and accepting participants in the United States, Canada, and Argentina! The first participant joined Enroll-HD on July 26th 2012 at the University of Tennessee Health Science Center, and already there are 793 participants as of June 26th 2013. Keep up to date with the latest developments through the newsletter, Enroll! – new issues will be posted here on this site.
for clinical sites currently recruiting participants
for the Enroll-HD Scientific Strategy Plan
Enroll! is a quarterly newsletter for research participants and site staff to catch the latest news about Enroll-HD progress around the world.
Enroll! Autumn 2014 Newsletter
A new Enroll-HD website that features much more information for participants, site staff, researchers and clinicians is currently under development, please check back frequently.
Enroll-HD Bulletin January 2015
Previous issues of the Enroll-HD newsletter and monthly news bulletins are available in the archive
What is Enroll-HD?
Enroll-HD will help the research community by:
Enroll-HD is a global longitudinal, observational study of Huntington’s disease
Enroll-HD collects a common set of data for all participants across all sites around the world
Enroll-HD also collects blood samples for DNA and cell lines
All data and samples will be available to share with researchers to answer important questions about HD
FIRST 500 Participants!
Providing clinical data and biologic samples to help better understand the human biology of Huntington’s disease – there is still a lot we don’t know
Determining what interventions work to improve the care of people with HD
Developing better, smarter clinical trials
Promoting the recruitment of clinical trial participants
On April 4, 2013 sites in North America enrolled the first 500 Participants into Enroll-HD. Since we first announced Enroll-HD in November 2010 we have made great progress in establishing this important research platform for HD research.
On March 15th, the Enroll-HD Steering Committee agreed to the following priorities for Enroll-HD:
Enable clinical research
Better understand Huntington's disease
Improve clinical care
To add information about your study site to the Global Site & Investigator Feasibility Questionnaire on Huntington's Disease please visit the GSID website