Enroll-HD - A Prospective Registry Study in a Global HD Cohort
     
   

Enroll-HD global investigator meeting

The Enroll-HD Global Investigator Meeting was held in Dublin, Ireland on 21-23 June 2012.
CITY WEST HOTEL - DUBLIN
The meeting did offer investigators and research staff the opportunity to join other researchers from around the world to learn more about Enroll-HD. Investigators and Research Staff from both new and existing sites worldwide who have shown a committed interest in participating in the Enroll-HD Study were invited. --> Agenda

Scientific Publication Review Committee was elected during the meeting.

Click here for the presentations:
Friday - Saturday
Q&A European session

Enroll-HD Newsletter

Written to keep you updated on the process of getting Enroll-HD up and running through-out the world. It is released quarterly.

About




  1. Enroll-HD is a global longitudinal, observational study of Huntington’s disease
  2. Enroll-HD collects a common set of data for all participants across all sites around the world
  3. Enroll-HD also collects blood samples for DNA and cell lines
  4. All data and samples will be available to share with researchers to answer important questions about HD
Enroll-HD will help the research community by:
  • Providing clinical data and biologic samples to help better understand the human biology of Huntington’s disease – there is still a lot we don’t know
  • Determining what interventions work to improve the care of people with HD
  • Developing better, smarter clinical trials
  • Promoting the recruitment of clinical trial participants

FIRST 500 Participants!


On April 4, 2013 sites in North America enrolled the first 500 Participants into Enroll-HD. Since we first announced Enroll-HD in November 2010 we have made great progress in establishing this important research platform for HD research. 

Enroll-HD Goals

On March 15th, the Enroll-HD Steering Committee agreed to the following priorities for Enroll-HD:

1. Enable clinical research
2. Better understand Huntington's disease
3. Improve clinical care

GSID

To add information about your study site to the Global Site & Investigator Feasibility Questionnaire on Huntington's Disease please visit the GSID website