Enroll-HD FAQ

Frequently Asked Questions


What is this study?

What is the purpose of the study?

Why should I get involved?

Who can join?

What happens when I sign up for the study?

How long does it take?

How long will the study last?

How is my privacy protected?

What happens to the data?

Do I need to know my HD status (be tested to find out whether I have the HD gene)?

How will this study speed up the process of finding new, effective treatments for HD?

What if I’ve already been part of Registry—what’s different?

How do I find out what’s going on with Enroll-HD?

What is the difference between a clinical observational study and a clinical trial?

How will I find out about clinical trials I might be eligible for?

How do I find out more to help me decide whether or not to get involved?

Who is paying for this study?