Enroll-HD FAQ

Frequently Asked Questions

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What is this study?


What is the purpose of the study?


Why should I get involved?


Who can join?


What happens when I sign up for the study?


How long does it take?


How long will the study last?


How is my privacy protected?


What happens to the data?


Do I need to know my HD status (be tested to find out whether I have the HD gene)?


How will this study speed up the process of finding new, effective treatments for HD?


What if I’ve already been part of Registry—what’s different?


How do I find out what’s going on with Enroll-HD?


What is the difference between a clinical observational study and a clinical trial?


How will I find out about clinical trials I might be eligible for?


How do I find out more to help me decide whether or not to get involved?


Who is paying for this study?