CHDI will be hosting the first Enroll-HD Congress from May 20-22, 2018 at the Hotel Le Chateau Frontenac in Quebec City, Canada. Attendance is by invitation only: CHDI Foundation will cover the cost (travel and accommodation) of attendance of each Enroll-HD site’s lead principal investigator plus another staff member, preferably your study coordinator if appropriate.
The Congress will address modifications to the Enroll-HD observational study and clinical research platform, highlight advances in HD clinical research, and continue to foster collaborative research and open data sharing. It will be an opportunity to connect, learn, and share experiences among the global Enroll-HD clinical community.
Highlights of the topics to be covered include:
- Beyond Enroll-HD 1.0
- Next generation HD assessments – is there a role for patient-reported outcomes?
- Enroll-HD Lite – what, why, and when?
- Results from the clinical trial of Ionis/Roche Pharmaceuticals’ HTTRx antisense oligonucleotide
- Tips for Enroll-HD study conduct
- Clinical studies and trials: Leveraging the Enroll-HD ecosystem
- Advantages and challenges to data sharing: Approaches and solutions
- Looking ahead: Human genetics results and applications
Activities will begin on Sunday, May 20 at 5:00 PM with a resource fair, followed by a welcome address, the keynote speech, and a buffet dinner. The program agenda kicks off on Monday morning and ends on the evening of Tuesday, May 22, with the gala dinner.
As part of this conference we are inviting submission of poster abstracts that describe either research that uses the Enroll-HD clinical observational data or samples, or Enroll-HD study-related activities such as study co-participation, innovative site operations, or recruitment strategies. We invite you to submit a poster abstract based upon the work you have done that is related to Enroll-HD.
Unfortunately there is limited space to physically hang posters at the conference hotel so we may not be able to accommodate everyone. We have formed an independent scientific review panel comprising members of the Enroll-HD Scientific Publication Review Committee to select poster abstract submissions and invite full posters to present at the conference.
Please submit your poster abstracts by Tuesday, March 13, 2018. You will be notified by email no later than Monday, April 9, 2018 if your poster has been selected for presentation.
If you think you qualify for an invitation to the Enroll-HD Congress but have not yet received an email link to register then please contact Roohee Peerzada (firstname.lastname@example.org)