Registry and Enroll-HD

Registry and Enroll-HD: What You Need to Know

The team at Ulm, Germany, which was first to switch over in December 2013.
The team at Ulm, Germany, which was first to switch over in December 2013.

Enroll-HD is now rolling out in Europe, replacing the former HD study Registry. The studies are very similar, although Enroll-HD
is larger and will be unified across the world. But people who have been participating in Registry will notice some differences.

Here’s what you should know and what you can expect from the change.

Why is Registry changing to Enroll-HD?

Why does having a global study matter?

What happens to my information from Registry?

Do I have to provide a blood sample to be part of Enroll-HD?

What else will be different at the visit?

Will the visit be longer or shorter?

How is my information kept private?

Who gets access to this data?

How long will Enroll-HD last?

When is the changeover to Enroll-HD happening?