Enroll-HD global investigator meeting
The Enroll-HD Global Investigator Meeting was held in Dublin, Ireland on 21-23 June 2012.
CITY WEST HOTEL - DUBLIN
The meeting did offer investigators and research staff the opportunity to join other researchers from around the world to learn more about Enroll-HD. Investigators and Research Staff from both new and existing sites worldwide who have shown a committed interest in participating in the Enroll-HD Study were invited. --> Agenda
Scientific Publication Review Committee
was elected during the meeting.
Click here for the presentations:
Saturday Q&A European session
Written to keep you updated on the process of getting Enroll-HD up and running through-out the world. It is released quarterly.
Enroll-HD will help the research community by:
- Enroll-HD is a global longitudinal,
observational study of Huntington’s disease
- Enroll-HD collects a common set of data
for all participants across all sites around the world
- Enroll-HD also collects blood
samples for DNA and cell lines
- All data and samples will be available to
with researchers to answer important questions about HD
- Providing clinical data and biologic
samples to help better understand the human biology of Huntington’s disease –
there is still a lot we don’t know
- Determining what interventions work
to improve the care of people with HD
- Developing better, smarter clinical
- Promoting the recruitment of clinical
FIRST 500 Participants!
On April 4, 2013 sites in North America enrolled the first 500 Participants into Enroll-HD. Since we first announced Enroll-HD in November 2010 we have made great progress in establishing this important research platform for HD research. Enroll-HD Goals
On March 15th, the Enroll-HD Steering Committee agreed to the following priorities for Enroll-HD:
1. Enable clinical research
2. Better understand Huntington's disease
3. Improve clinical care
To add information about your study site to the Global Site & Investigator Feasibility Questionnaire on Huntington's Disease please visit the GSID website